(405 ILCS 30/1)(from Ch. 91 1/2, par. 901) Sec. 1. Purpose. It is declared to be the policy and intent of the Illinois General Assembly that the Department of Human Services assume leadership in facilitating the establishment of comprehensive and coordinated arrays of private and public services for persons with mental illness, persons with a developmental disability, and alcohol and drug dependent citizens residing in communities throughout the state. The Department shall work in partnership with local government entities, direct service providers, voluntary associations and communities to create a system that is sensitive to the needs of local communities and which complements existing family and other natural supports, social institutions and programs. The goals of the service system shall include but not be limited to the following: to strengthen the disabled individual's independence, self‑esteem and ability to participate in and contribute to community life; to insure continuity of care for clients; to enable disabled persons to access needed services, commensurate with their individual wishes and needs, regardless of where they reside in the state; to prevent unnecessary institutionalization and the dislocation of individuals from their home communities; to provide a range of services so that persons can receive these services in settings which do not unnecessarily restrict their liberty; and to encourage clients to move among settings as their needs change. The system shall include provision of services in the areas of prevention, client assessment and diagnosis, case coordination, crisis and emergency care, treatment and habilitation and support services, and community residential alternatives to institutional settings. The General Assembly recognizes that community programs are an integral part of the larger service system, which includes state‑operated facilities for persons who cannot receive appropriate services in the community. Towards achievement of these ends, the Department of Human Services, working in coordination with other State agencies, shall assume responsibilities pursuant to this Act, which includes activities in the areas of planning, quality assurance, program evaluation, community education, and the provision of financial and technical assistance to local provider agencies. (Source: P.A. 88‑380; 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/2)(from Ch. 91 1/2, par. 902) Sec. 2. Community Services System. Services should be planned, developed, delivered and evaluated as part of a comprehensive and coordinated system. The Department of Human Services shall encourage the establishment of services in each area of the State which cover the services categories described below. What specific services are provided under each service category shall be based on local needs; special attention shall be given to unserved and underserved populations, including children and youth, racial and ethnic minorities, and the elderly. The service categories shall include: (a) Prevention: services designed primarily to reduce the incidence and ameliorate the severity of developmental disabilities, mental illness and alcohol and drug dependence; (b) Client Assessment and Diagnosis: services designed to identify persons with developmental disabilities, mental illness and alcohol and drug dependency; to determine the extent of the disability and the level of functioning; information obtained through client evaluation can be used in individual treatment and habilitation plans; to assure appropriate placement and to assist in program evaluation; (c) Case Coordination: services to provide information and assistance to disabled persons to insure that they obtain needed services provided by the private and public sectors; case coordination services should be available to individuals whose functioning level or history of institutional recidivism or long‑term care indicate that such assistance is required for successful community living; (d) Crisis and Emergency: services to assist individuals and their families through crisis periods, to stabilize individuals under stress and to prevent unnecessary institutionalization; (e) Treatment, Habilitation and Support: services designed to help individuals develop skills which promote independence and improved levels of social and vocational functioning and personal growth; and to provide non‑treatment support services which are necessary for successful community living; (f) Community Residential Alternatives to Institutional Settings: services to provide living arrangements for persons unable to live independently; the level of supervision, services provided and length of stay at community residential alternatives will vary by the type of program and the needs and functioning level of the residents; other services may be provided in a community residential alternative which promote the acquisition of independent living skills and integration with the community. (Source: P.A. 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/3)(from Ch. 91 1/2, par. 903) Sec. 3. Responsibilities for Community Services. Pursuant to this Act, the Department of Human Services shall facilitate the establishment of a comprehensive and coordinated array of community services based upon a federal, State and local partnership. In order to assist in implementation of this Act, the Department shall prescribe and publish rules and regulations. The Department may request the assistance of other State agencies, local government entities, direct services providers, trade associations, and others in the development of these regulations or other policies related to community services. The Department shall assume the following roles and responsibilities for community services: (a) Service Priorities. Within the service categories described in Section 2 of this Act, establish and publish priorities for community services to be rendered, and priority populations to receive these services. (b) Planning. By January 1, 1994 and by January 1 of each third year thereafter, prepare and publish a Plan which describes goals and objectives for community services state‑wide and for regions and subregions needs assessment, steps and time‑tables for implementation of the goals also shall be included; programmatic goals and objectives for community services shall cover the service categories defined in Section 2 of this Act; the Department shall insure local participation in the planning process. (c) Public Information and Education. Develop programs aimed at improving the relationship between communities and their residents with disabilities; prepare and disseminate public information and educational materials on the prevention of developmental disabilities, mental illness, and alcohol or drug dependence, and on available treatment and habilitation services for persons with these disabilities. (d) Quality Assurance. Promulgate minimum program standards, rules and regulations to insure that Department funded services maintain acceptable quality and assure enforcement of these standards through regular monitoring of services and through program evaluation; this applies except where this responsibility is explicitly given by law to another State agency. (d‑5) Accreditation requirements for providers of mental health and substance abuse treatment services. Except when the federal or State statutes authorizing a program, or the federal regulations implementing a program, are to the contrary, accreditation shall be accepted by the Department in lieu of the Department's facility or program certification or licensure onsite review requirements and shall be accepted as a substitute for the Department's administrative and program monitoring requirements, except as required by subsection (d‑10), in the case of: (1) Any organization from which the Department
purchases mental health or substance abuse services and that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (Joint Commission on Accreditation of Healthcare Organizations (JCAHO)); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (Council on Accreditation for Children and Family Services (COA)); or the Standards Manual for Organizations Serving People with Disabilities (the Rehabilitation Accreditation Commission (CARF)).
(2) Any mental health facility or program licensed
or certified by the Department, or any substance abuse service licensed by the Department, that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (JCAHO); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (COA); or the Standards Manual for Organizations Serving People with Disabilities (CARF).
(3) Any network of providers from which the
Department purchases mental health or substance abuse services and that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (JCAHO); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (COA); the Standards Manual for Organizations Serving People with Disabilities (CARF); or the National Committee for Quality Assurance. A provider organization that is part of an accredited network shall be afforded the same rights under this subsection.
(d‑10) For mental health and substance abuse services, the Department may develop standards or promulgate rules that establish additional standards for monitoring and licensing accredited programs, services, and facilities that the Department has determined are not covered by the accreditation standards and processes. These additional standards for monitoring and licensing accredited programs, services, and facilities and the associated monitoring must not duplicate the standards and processes already covered by the accrediting bodies. (d‑15) The Department shall be given proof of compliance with fire and health safety standards, which must be submitted as required by rule. (d‑20) The Department, by accepting the survey or inspection of an accrediting organization, does not forfeit its rights to perform inspections at any time, including contract monitoring to ensure that services are provided in accordance with the contract. The Department reserves the right to monitor a provider of mental health and substance abuse treatment services when the survey or inspection of an accrediting organization has established any deficiency in the accreditation standards and processes. (d‑25) On and after the effective date of this amendatory Act of the 92nd General Assembly, the accreditation requirements of this Section apply to contracted organizations that are already accredited. (e) Program Evaluation. Develop a system for conducting evaluation of the effectiveness of community services, according to preestablished performance standards; evaluate the extent to which performance according to established standards aids in achieving the goals of this Act; evaluation data also shall be used for quality assurance purposes as well as for planning activities. (f) Research. Conduct research in order to increase understanding of mental illness, developmental disabilities and alcohol and drug dependence. (g) Technical Assistance. Provide technical assistance to provider agencies receiving funds or serving clients in order to assist these agencies in providing appropriate, quality services; also provide assistance and guidance to other State agencies and local governmental bodies serving the disabled in order to strengthen their efforts to provide appropriate community services; and assist provider agencies in accessing other available funding, including federal, State, local, third‑party and private resources. (h) Placement Process. Promote the appropriate placement of clients in community services through the development and implementation of client assessment and diagnostic instruments to assist in identifying the individual's service needs; client assessment instruments also can be utilized for purposes of program evaluation; whenever possible, assure that placements in State‑operated facilities are referrals from community agencies. (i) Interagency Coordination. Assume leadership in promoting cooperation among State health and human service agencies to insure that a comprehensive, coordinated community services system is in place; to insure persons with a disability access to needed services; and to insure continuity of care and allow clients to move among service settings as their needs change; also work with other agencies to establish effective prevention programs. (j) Financial Assistance. Provide financial assistance to local provider agencies through purchase‑of‑care contracts and grants, pursuant to Section 4 of this Act. (Source: P.A. 95‑682, eff. 10‑11‑07.)
(405 ILCS 30/4)(from Ch. 91 1/2, par. 904) Sec. 4. Financing for Community Services. (a) The Department of Human Services is authorized to provide financial reimbursement to eligible private service providers, corporations, local government entities or voluntary associations for the provision of services to persons with mental illness, persons with a developmental disability and alcohol and drug dependent persons living in the community for the purpose of achieving the goals of this Act. The Department shall utilize the following funding mechanisms for community services: (1) Purchase of Care Contracts: services purchased
on a predetermined fee per unit of service basis from private providers or governmental entities. Fee per service rates are set by an established formula which covers some portion of personnel, supplies, and other allowable costs, and which makes some allowance for geographic variations in costs as well as for additional program components.
(2) Grants: sums of money which the Department
grants to private providers or governmental entities pursuant to the grant recipient's agreement to provide certain services, as defined by departmental grant guidelines, to an approximate number of service recipients. Grant levels are set through consideration of personnel, supply and other allowable costs, as well as other funds available to the program.
(3) Other Funding Arrangements: funding mechanisms
may be established on a pilot basis in order to examine the feasibility of alternative financing arrangements for the provision of community services.
The Department shall establish and maintain an equitable system of payment which allows providers to improve persons with disabilities' capabilities for independence and reduces their reliance on State‑operated services. (b) The Governor shall create a commission by September 1, 2009, or as soon thereafter as possible, to review funding methodologies, identify gaps in funding, identify revenue, and prioritize use of that revenue for community developmental disability services, mental health services, alcohol and substance abuse services, rehabilitation services, and early intervention services. The Office of the Governor shall provide staff support for the commission. (c) The first meeting of the commission shall be held within the first month after the creation and appointment of the commission, and a final report summarizing the commission's recommendations must be issued within 12 months after the first meeting, and no later than September 1, 2010, to the Governor and the General Assembly. (d) The commission shall have the following 13 voting members: (A) one member of the House of Representatives,
appointed by the Speaker of the House of Representatives;
(B) one member of the House of Representatives,
appointed by the House Minority Leader;
(C) one member of the Senate, appointed by the
President of the Senate;
(D) one member of the Senate, appointed by the
Senate Minority Leader;
(E) one person with a developmental disability, or
a family member or guardian of such a person, appointed by the Governor;
(F) one person with a mental illness, or a family
member or guardian of such a person, appointed by the Governor;
(G) two persons from unions that represent employees
of community providers that serve people with developmental disabilities, mental illness, and alcohol and substance abuse disorders, appointed by the Governor; and
(H) five persons from statewide associations that
represent community providers that provide residential, day training, and other developmental disability services, mental health services, alcohol and substance abuse services, rehabilitation services, or early intervention services, or any combination of those, appointed by the Governor.
The commission shall also have the following ex‑officio,
nonvoting members:
(I) the Director of the Governor's Office of
Management and Budget or his or her designee;
(J) the Chief Financial Officer of the Department of
Human Services or his or her designee;
(K) the Administrator of the Department of
Healthcare and Family Services Division of Finance or his or her designee;
(L) the Director of the Department of Human Services
Division of Developmental Disabilities or his or her designee;
(M) the Director of the Department of Human Services
Division of Mental Health or his or her designee; and
(N) the Director of the Department of Human Services
Division of Alcohol and Substance Abuse or his or her designee.
(e) The funding methodologies must reflect economic factors inherent in providing services and supports, recognize individual disability needs, and consider geographic differences, transportation costs, required staffing ratios, and mandates not currently funded. (f) In accepting Department funds, providers shall recognize their responsibility to be accountable to the Department and the State for the delivery of services which are consistent with the philosophies and goals of this Act and the rules and regulations promulgated under it. (Source: P.A. 95‑682, eff. 10‑11‑07; 96‑652, eff. 8‑24‑09.)
(405 ILCS 30/4.1)(from Ch. 91 1/2, par. 904.1) Sec. 4.1. Respite Services. (a) The Department of Human Services shall coordinate and financially assist the provision of community respite services for persons with a developmental disability. A respite service is the supplying of a substitute caregiver on a short‑term basis to provide temporary relief to the usual caregiver maintaining a person with a developmental disability in his home. Respite services shall be classified as substitute care provided on any of the following bases: (1) hourly or daily, which may include overnight, in
the home of a person with a developmental disability;
(2) daily, which shall include overnight, in a
community residential setting which is licensed, certified, approved or otherwise sanctioned by the Department or another State agency; or
(3) hourly, which shall not include overnight, in a
community provider location.
(b) A person is eligible for respite services if he or she is a person with a developmental disability and lives in a natural or foster family home with natural or foster family members whose care and supervision are essential to his or her well‑being. (c) In allocating funds to community providers for respite services, the Department shall give preference to programs which serve special population groups and targeted geographic areas, as determined by the Department. In determining special population groups, the Department shall consider the adequacy of current service programs in meeting the unique needs of minority groups and persons with certain types of disabilities. In determining targeted geographic areas, the Department shall consider an area's current funding and service levels and demographic indicators of need, such as the total population, the population in poverty and the infant mortality rate. The Department's provision of funds to community providers shall be subject to available appropriations. (d) Community providers may fund respite services through monies provided by the Department, local units of government, fees and other revenue sources. Any fees charged by a community provider shall be in accordance with a sliding fee scale established by the community provider pursuant to guidelines developed by the Department. The Department's guidelines shall include, but are not limited to, the following criteria: (1) fees may be charged only to responsible
relatives, as defined in Section 1‑124 of the Mental Health and Developmental Disabilities Code;
(2) no parent or guardian may be charged a fee for
respite services provided to his or her child less than 18 years of age or 18 through 21 years of age who is receiving services under the Education for All Handicapped Children Act of 1975 (Public Law 94‑142);
(3) no fee may exceed the provider's cost for the
service;
(4) no fee shall be charged which constitutes a
hardship for the respite service recipient's family or which impedes receiving needed respite services;
(5) fee scales shall incorporate consideration of
the income and size of the respite service recipient's family and any unusual expenses of the family, including those relating to the medical or disabling condition of the recipient.
(e) If a community provider has insufficient funds to provide respite services to all eligible persons, it shall give preference to those eligible persons in greatest need as defined by the Department. In defining need, the Department may consider the capacity of the person's family to provide care and the person's need for special services or programs based on such factors as functional level, medical and physical impairments and maladaptive behavior. (Source: P.A. 88‑380; 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/4.3) Sec. 4.3. Family Support Services Voucher Pilot Program. (a) In this Section: "Family member" means a family member as defined by rules adopted by the Department of Human Services. "Family support services" means the services and activities described in subsection (d). (b) The Department of Human Services shall establish a Family Support Services Voucher Pilot Program which shall be a conversion of the program defined in Section 4.1. The Department may establish no more than 5 pilot programs. (c) The purpose of the pilot program is to do the following: (1) Increase the number of families who are able to
access family support services.
(2) Provide families with greater control over
family support services.
(3) Ensure that the diverse family support services
needs of families can be accommodated.
(4) Encourage a family's contribution toward payment
for the family support services they receive.
(5) Serve as a pilot program to evaluate the merits
of a family support services voucher program in comparison to the traditional respite program.
(d) The Department shall contract with community agencies to issue vouchers to participating families, or to employ a voucher‑like method that similarly makes services available based on the choice of families. A family may use the vouchers to purchase the following services and activities or to otherwise provide for those services and activities: (1) Services of an in‑home caregiver to supervise
the family member with a developmental disability in the home or in the community or both when other family members are not present.
(2) Services of a person to accompany the family
member with a developmental disability on outings, community activities, and similar activities.
(3) Registration of the family member with a
developmental disability in park district programs, extracurricular school activities, community college classes, and other similar types of community‑based programs.
(4) Services of home health care personnel if
medical training or expertise is required to meet the needs of the family member with a developmental disability.
(e) Families may employ the following types of individuals to provide family support services: (1) Related family members who do not reside in the
same home as the family member with a developmental disability.
(2) Friends or neighbors whom the family designates
as capable of meeting the needs of the family member with a developmental disability.
(3) Individuals recruited from the community (for
example, church members or college students).
(4) Individuals who work with the family member with
a developmental disability in a different capacity (for example, classroom aide or day program staff).
(5) Persons whose services are contracted for
through a home health agency licensed under the Home Health, Home Services, and Home Nursing Agency Licensing Act.
(f) Family support services moneys under the pilot program may not be used to purchase or provide for any of the following services or activities: (1) Out‑of‑home medical services. (2) Medical, therapeutic, or developmental
evaluations.
(3) Any product or item (for example, sports
equipment, therapeutic devices, or clothing).
(4) Family support services provided by a family
member whose primary residence is the same as that of the family member with a developmental disability.
(5) Services of a person to accompany the family on
an overnight trip.
(6) Any service or activity that should be provided
by the school in which the family member with a developmental disability is enrolled or that occurs as part of that school's typical school routine.
(7) Child care services while the primary caretaker
(405 ILCS 30/1)(from Ch. 91 1/2, par. 901) Sec. 1. Purpose. It is declared to be the policy and intent of the Illinois General Assembly that the Department of Human Services assume leadership in facilitating the establishment of comprehensive and coordinated arrays of private and public services for persons with mental illness, persons with a developmental disability, and alcohol and drug dependent citizens residing in communities throughout the state. The Department shall work in partnership with local government entities, direct service providers, voluntary associations and communities to create a system that is sensitive to the needs of local communities and which complements existing family and other natural supports, social institutions and programs. The goals of the service system shall include but not be limited to the following: to strengthen the disabled individual's independence, self‑esteem and ability to participate in and contribute to community life; to insure continuity of care for clients; to enable disabled persons to access needed services, commensurate with their individual wishes and needs, regardless of where they reside in the state; to prevent unnecessary institutionalization and the dislocation of individuals from their home communities; to provide a range of services so that persons can receive these services in settings which do not unnecessarily restrict their liberty; and to encourage clients to move among settings as their needs change. The system shall include provision of services in the areas of prevention, client assessment and diagnosis, case coordination, crisis and emergency care, treatment and habilitation and support services, and community residential alternatives to institutional settings. The General Assembly recognizes that community programs are an integral part of the larger service system, which includes state‑operated facilities for persons who cannot receive appropriate services in the community. Towards achievement of these ends, the Department of Human Services, working in coordination with other State agencies, shall assume responsibilities pursuant to this Act, which includes activities in the areas of planning, quality assurance, program evaluation, community education, and the provision of financial and technical assistance to local provider agencies. (Source: P.A. 88‑380; 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/2)(from Ch. 91 1/2, par. 902) Sec. 2. Community Services System. Services should be planned, developed, delivered and evaluated as part of a comprehensive and coordinated system. The Department of Human Services shall encourage the establishment of services in each area of the State which cover the services categories described below. What specific services are provided under each service category shall be based on local needs; special attention shall be given to unserved and underserved populations, including children and youth, racial and ethnic minorities, and the elderly. The service categories shall include: (a) Prevention: services designed primarily to reduce the incidence and ameliorate the severity of developmental disabilities, mental illness and alcohol and drug dependence; (b) Client Assessment and Diagnosis: services designed to identify persons with developmental disabilities, mental illness and alcohol and drug dependency; to determine the extent of the disability and the level of functioning; information obtained through client evaluation can be used in individual treatment and habilitation plans; to assure appropriate placement and to assist in program evaluation; (c) Case Coordination: services to provide information and assistance to disabled persons to insure that they obtain needed services provided by the private and public sectors; case coordination services should be available to individuals whose functioning level or history of institutional recidivism or long‑term care indicate that such assistance is required for successful community living; (d) Crisis and Emergency: services to assist individuals and their families through crisis periods, to stabilize individuals under stress and to prevent unnecessary institutionalization; (e) Treatment, Habilitation and Support: services designed to help individuals develop skills which promote independence and improved levels of social and vocational functioning and personal growth; and to provide non‑treatment support services which are necessary for successful community living; (f) Community Residential Alternatives to Institutional Settings: services to provide living arrangements for persons unable to live independently; the level of supervision, services provided and length of stay at community residential alternatives will vary by the type of program and the needs and functioning level of the residents; other services may be provided in a community residential alternative which promote the acquisition of independent living skills and integration with the community. (Source: P.A. 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/3)(from Ch. 91 1/2, par. 903) Sec. 3. Responsibilities for Community Services. Pursuant to this Act, the Department of Human Services shall facilitate the establishment of a comprehensive and coordinated array of community services based upon a federal, State and local partnership. In order to assist in implementation of this Act, the Department shall prescribe and publish rules and regulations. The Department may request the assistance of other State agencies, local government entities, direct services providers, trade associations, and others in the development of these regulations or other policies related to community services. The Department shall assume the following roles and responsibilities for community services: (a) Service Priorities. Within the service categories described in Section 2 of this Act, establish and publish priorities for community services to be rendered, and priority populations to receive these services. (b) Planning. By January 1, 1994 and by January 1 of each third year thereafter, prepare and publish a Plan which describes goals and objectives for community services state‑wide and for regions and subregions needs assessment, steps and time‑tables for implementation of the goals also shall be included; programmatic goals and objectives for community services shall cover the service categories defined in Section 2 of this Act; the Department shall insure local participation in the planning process. (c) Public Information and Education. Develop programs aimed at improving the relationship between communities and their residents with disabilities; prepare and disseminate public information and educational materials on the prevention of developmental disabilities, mental illness, and alcohol or drug dependence, and on available treatment and habilitation services for persons with these disabilities. (d) Quality Assurance. Promulgate minimum program standards, rules and regulations to insure that Department funded services maintain acceptable quality and assure enforcement of these standards through regular monitoring of services and through program evaluation; this applies except where this responsibility is explicitly given by law to another State agency. (d‑5) Accreditation requirements for providers of mental health and substance abuse treatment services. Except when the federal or State statutes authorizing a program, or the federal regulations implementing a program, are to the contrary, accreditation shall be accepted by the Department in lieu of the Department's facility or program certification or licensure onsite review requirements and shall be accepted as a substitute for the Department's administrative and program monitoring requirements, except as required by subsection (d‑10), in the case of: (1) Any organization from which the Department
purchases mental health or substance abuse services and that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (Joint Commission on Accreditation of Healthcare Organizations (JCAHO)); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (Council on Accreditation for Children and Family Services (COA)); or the Standards Manual for Organizations Serving People with Disabilities (the Rehabilitation Accreditation Commission (CARF)).
(2) Any mental health facility or program licensed
or certified by the Department, or any substance abuse service licensed by the Department, that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (JCAHO); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (COA); or the Standards Manual for Organizations Serving People with Disabilities (CARF).
(3) Any network of providers from which the
Department purchases mental health or substance abuse services and that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (JCAHO); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (COA); the Standards Manual for Organizations Serving People with Disabilities (CARF); or the National Committee for Quality Assurance. A provider organization that is part of an accredited network shall be afforded the same rights under this subsection.
(d‑10) For mental health and substance abuse services, the Department may develop standards or promulgate rules that establish additional standards for monitoring and licensing accredited programs, services, and facilities that the Department has determined are not covered by the accreditation standards and processes. These additional standards for monitoring and licensing accredited programs, services, and facilities and the associated monitoring must not duplicate the standards and processes already covered by the accrediting bodies. (d‑15) The Department shall be given proof of compliance with fire and health safety standards, which must be submitted as required by rule. (d‑20) The Department, by accepting the survey or inspection of an accrediting organization, does not forfeit its rights to perform inspections at any time, including contract monitoring to ensure that services are provided in accordance with the contract. The Department reserves the right to monitor a provider of mental health and substance abuse treatment services when the survey or inspection of an accrediting organization has established any deficiency in the accreditation standards and processes. (d‑25) On and after the effective date of this amendatory Act of the 92nd General Assembly, the accreditation requirements of this Section apply to contracted organizations that are already accredited. (e) Program Evaluation. Develop a system for conducting evaluation of the effectiveness of community services, according to preestablished performance standards; evaluate the extent to which performance according to established standards aids in achieving the goals of this Act; evaluation data also shall be used for quality assurance purposes as well as for planning activities. (f) Research. Conduct research in order to increase understanding of mental illness, developmental disabilities and alcohol and drug dependence. (g) Technical Assistance. Provide technical assistance to provider agencies receiving funds or serving clients in order to assist these agencies in providing appropriate, quality services; also provide assistance and guidance to other State agencies and local governmental bodies serving the disabled in order to strengthen their efforts to provide appropriate community services; and assist provider agencies in accessing other available funding, including federal, State, local, third‑party and private resources. (h) Placement Process. Promote the appropriate placement of clients in community services through the development and implementation of client assessment and diagnostic instruments to assist in identifying the individual's service needs; client assessment instruments also can be utilized for purposes of program evaluation; whenever possible, assure that placements in State‑operated facilities are referrals from community agencies. (i) Interagency Coordination. Assume leadership in promoting cooperation among State health and human service agencies to insure that a comprehensive, coordinated community services system is in place; to insure persons with a disability access to needed services; and to insure continuity of care and allow clients to move among service settings as their needs change; also work with other agencies to establish effective prevention programs. (j) Financial Assistance. Provide financial assistance to local provider agencies through purchase‑of‑care contracts and grants, pursuant to Section 4 of this Act. (Source: P.A. 95‑682, eff. 10‑11‑07.)
(405 ILCS 30/4)(from Ch. 91 1/2, par. 904) Sec. 4. Financing for Community Services. (a) The Department of Human Services is authorized to provide financial reimbursement to eligible private service providers, corporations, local government entities or voluntary associations for the provision of services to persons with mental illness, persons with a developmental disability and alcohol and drug dependent persons living in the community for the purpose of achieving the goals of this Act. The Department shall utilize the following funding mechanisms for community services: (1) Purchase of Care Contracts: services purchased
on a predetermined fee per unit of service basis from private providers or governmental entities. Fee per service rates are set by an established formula which covers some portion of personnel, supplies, and other allowable costs, and which makes some allowance for geographic variations in costs as well as for additional program components.
(2) Grants: sums of money which the Department
grants to private providers or governmental entities pursuant to the grant recipient's agreement to provide certain services, as defined by departmental grant guidelines, to an approximate number of service recipients. Grant levels are set through consideration of personnel, supply and other allowable costs, as well as other funds available to the program.
(3) Other Funding Arrangements: funding mechanisms
may be established on a pilot basis in order to examine the feasibility of alternative financing arrangements for the provision of community services.
The Department shall establish and maintain an equitable system of payment which allows providers to improve persons with disabilities' capabilities for independence and reduces their reliance on State‑operated services. (b) The Governor shall create a commission by September 1, 2009, or as soon thereafter as possible, to review funding methodologies, identify gaps in funding, identify revenue, and prioritize use of that revenue for community developmental disability services, mental health services, alcohol and substance abuse services, rehabilitation services, and early intervention services. The Office of the Governor shall provide staff support for the commission. (c) The first meeting of the commission shall be held within the first month after the creation and appointment of the commission, and a final report summarizing the commission's recommendations must be issued within 12 months after the first meeting, and no later than September 1, 2010, to the Governor and the General Assembly. (d) The commission shall have the following 13 voting members: (A) one member of the House of Representatives,
appointed by the Speaker of the House of Representatives;
(B) one member of the House of Representatives,
appointed by the House Minority Leader;
(C) one member of the Senate, appointed by the
President of the Senate;
(D) one member of the Senate, appointed by the
Senate Minority Leader;
(E) one person with a developmental disability, or
a family member or guardian of such a person, appointed by the Governor;
(F) one person with a mental illness, or a family
member or guardian of such a person, appointed by the Governor;
(G) two persons from unions that represent employees
of community providers that serve people with developmental disabilities, mental illness, and alcohol and substance abuse disorders, appointed by the Governor; and
(H) five persons from statewide associations that
represent community providers that provide residential, day training, and other developmental disability services, mental health services, alcohol and substance abuse services, rehabilitation services, or early intervention services, or any combination of those, appointed by the Governor.
The commission shall also have the following ex‑officio,
nonvoting members:
(I) the Director of the Governor's Office of
Management and Budget or his or her designee;
(J) the Chief Financial Officer of the Department of
Human Services or his or her designee;
(K) the Administrator of the Department of
Healthcare and Family Services Division of Finance or his or her designee;
(L) the Director of the Department of Human Services
Division of Developmental Disabilities or his or her designee;
(M) the Director of the Department of Human Services
Division of Mental Health or his or her designee; and
(N) the Director of the Department of Human Services
Division of Alcohol and Substance Abuse or his or her designee.
(e) The funding methodologies must reflect economic factors inherent in providing services and supports, recognize individual disability needs, and consider geographic differences, transportation costs, required staffing ratios, and mandates not currently funded. (f) In accepting Department funds, providers shall recognize their responsibility to be accountable to the Department and the State for the delivery of services which are consistent with the philosophies and goals of this Act and the rules and regulations promulgated under it. (Source: P.A. 95‑682, eff. 10‑11‑07; 96‑652, eff. 8‑24‑09.)
(405 ILCS 30/4.1)(from Ch. 91 1/2, par. 904.1) Sec. 4.1. Respite Services. (a) The Department of Human Services shall coordinate and financially assist the provision of community respite services for persons with a developmental disability. A respite service is the supplying of a substitute caregiver on a short‑term basis to provide temporary relief to the usual caregiver maintaining a person with a developmental disability in his home. Respite services shall be classified as substitute care provided on any of the following bases: (1) hourly or daily, which may include overnight, in
the home of a person with a developmental disability;
(2) daily, which shall include overnight, in a
community residential setting which is licensed, certified, approved or otherwise sanctioned by the Department or another State agency; or
(3) hourly, which shall not include overnight, in a
community provider location.
(b) A person is eligible for respite services if he or she is a person with a developmental disability and lives in a natural or foster family home with natural or foster family members whose care and supervision are essential to his or her well‑being. (c) In allocating funds to community providers for respite services, the Department shall give preference to programs which serve special population groups and targeted geographic areas, as determined by the Department. In determining special population groups, the Department shall consider the adequacy of current service programs in meeting the unique needs of minority groups and persons with certain types of disabilities. In determining targeted geographic areas, the Department shall consider an area's current funding and service levels and demographic indicators of need, such as the total population, the population in poverty and the infant mortality rate. The Department's provision of funds to community providers shall be subject to available appropriations. (d) Community providers may fund respite services through monies provided by the Department, local units of government, fees and other revenue sources. Any fees charged by a community provider shall be in accordance with a sliding fee scale established by the community provider pursuant to guidelines developed by the Department. The Department's guidelines shall include, but are not limited to, the following criteria: (1) fees may be charged only to responsible
relatives, as defined in Section 1‑124 of the Mental Health and Developmental Disabilities Code;
(2) no parent or guardian may be charged a fee for
respite services provided to his or her child less than 18 years of age or 18 through 21 years of age who is receiving services under the Education for All Handicapped Children Act of 1975 (Public Law 94‑142);
(3) no fee may exceed the provider's cost for the
service;
(4) no fee shall be charged which constitutes a
hardship for the respite service recipient's family or which impedes receiving needed respite services;
(5) fee scales shall incorporate consideration of
the income and size of the respite service recipient's family and any unusual expenses of the family, including those relating to the medical or disabling condition of the recipient.
(e) If a community provider has insufficient funds to provide respite services to all eligible persons, it shall give preference to those eligible persons in greatest need as defined by the Department. In defining need, the Department may consider the capacity of the person's family to provide care and the person's need for special services or programs based on such factors as functional level, medical and physical impairments and maladaptive behavior. (Source: P.A. 88‑380; 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/4.3) Sec. 4.3. Family Support Services Voucher Pilot Program. (a) In this Section: "Family member" means a family member as defined by rules adopted by the Department of Human Services. "Family support services" means the services and activities described in subsection (d). (b) The Department of Human Services shall establish a Family Support Services Voucher Pilot Program which shall be a conversion of the program defined in Section 4.1. The Department may establish no more than 5 pilot programs. (c) The purpose of the pilot program is to do the following: (1) Increase the number of families who are able to
access family support services.
(2) Provide families with greater control over
family support services.
(3) Ensure that the diverse family support services
needs of families can be accommodated.
(4) Encourage a family's contribution toward payment
for the family support services they receive.
(5) Serve as a pilot program to evaluate the merits
of a family support services voucher program in comparison to the traditional respite program.
(d) The Department shall contract with community agencies to issue vouchers to participating families, or to employ a voucher‑like method that similarly makes services available based on the choice of families. A family may use the vouchers to purchase the following services and activities or to otherwise provide for those services and activities: (1) Services of an in‑home caregiver to supervise
the family member with a developmental disability in the home or in the community or both when other family members are not present.
(2) Services of a person to accompany the family
member with a developmental disability on outings, community activities, and similar activities.
(3) Registration of the family member with a
developmental disability in park district programs, extracurricular school activities, community college classes, and other similar types of community‑based programs.
(4) Services of home health care personnel if
medical training or expertise is required to meet the needs of the family member with a developmental disability.
(e) Families may employ the following types of individuals to provide family support services: (1) Related family members who do not reside in the
same home as the family member with a developmental disability.
(2) Friends or neighbors whom the family designates
as capable of meeting the needs of the family member with a developmental disability.
(3) Individuals recruited from the community (for
example, church members or college students).
(4) Individuals who work with the family member with
a developmental disability in a different capacity (for example, classroom aide or day program staff).
(5) Persons whose services are contracted for
through a home health agency licensed under the Home Health, Home Services, and Home Nursing Agency Licensing Act.
(f) Family support services moneys under the pilot program may not be used to purchase or provide for any of the following services or activities: (1) Out‑of‑home medical services. (2) Medical, therapeutic, or developmental
evaluations.
(3) Any product or item (for example, sports
equipment, therapeutic devices, or clothing).
(4) Family support services provided by a family
member whose primary residence is the same as that of the family member with a developmental disability.
(5) Services of a person to accompany the family on
an overnight trip.
(6) Any service or activity that should be provided
by the school in which the family member with a developmental disability is enrolled or that occurs as part of that school's typical school routine.
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(405 ILCS 30/1)(from Ch. 91 1/2, par. 901) Sec. 1. Purpose. It is declared to be the policy and intent of the Illinois General Assembly that the Department of Human Services assume leadership in facilitating the establishment of comprehensive and coordinated arrays of private and public services for persons with mental illness, persons with a developmental disability, and alcohol and drug dependent citizens residing in communities throughout the state. The Department shall work in partnership with local government entities, direct service providers, voluntary associations and communities to create a system that is sensitive to the needs of local communities and which complements existing family and other natural supports, social institutions and programs. The goals of the service system shall include but not be limited to the following: to strengthen the disabled individual's independence, self‑esteem and ability to participate in and contribute to community life; to insure continuity of care for clients; to enable disabled persons to access needed services, commensurate with their individual wishes and needs, regardless of where they reside in the state; to prevent unnecessary institutionalization and the dislocation of individuals from their home communities; to provide a range of services so that persons can receive these services in settings which do not unnecessarily restrict their liberty; and to encourage clients to move among settings as their needs change. The system shall include provision of services in the areas of prevention, client assessment and diagnosis, case coordination, crisis and emergency care, treatment and habilitation and support services, and community residential alternatives to institutional settings. The General Assembly recognizes that community programs are an integral part of the larger service system, which includes state‑operated facilities for persons who cannot receive appropriate services in the community. Towards achievement of these ends, the Department of Human Services, working in coordination with other State agencies, shall assume responsibilities pursuant to this Act, which includes activities in the areas of planning, quality assurance, program evaluation, community education, and the provision of financial and technical assistance to local provider agencies. (Source: P.A. 88‑380; 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/2)(from Ch. 91 1/2, par. 902) Sec. 2. Community Services System. Services should be planned, developed, delivered and evaluated as part of a comprehensive and coordinated system. The Department of Human Services shall encourage the establishment of services in each area of the State which cover the services categories described below. What specific services are provided under each service category shall be based on local needs; special attention shall be given to unserved and underserved populations, including children and youth, racial and ethnic minorities, and the elderly. The service categories shall include: (a) Prevention: services designed primarily to reduce the incidence and ameliorate the severity of developmental disabilities, mental illness and alcohol and drug dependence; (b) Client Assessment and Diagnosis: services designed to identify persons with developmental disabilities, mental illness and alcohol and drug dependency; to determine the extent of the disability and the level of functioning; information obtained through client evaluation can be used in individual treatment and habilitation plans; to assure appropriate placement and to assist in program evaluation; (c) Case Coordination: services to provide information and assistance to disabled persons to insure that they obtain needed services provided by the private and public sectors; case coordination services should be available to individuals whose functioning level or history of institutional recidivism or long‑term care indicate that such assistance is required for successful community living; (d) Crisis and Emergency: services to assist individuals and their families through crisis periods, to stabilize individuals under stress and to prevent unnecessary institutionalization; (e) Treatment, Habilitation and Support: services designed to help individuals develop skills which promote independence and improved levels of social and vocational functioning and personal growth; and to provide non‑treatment support services which are necessary for successful community living; (f) Community Residential Alternatives to Institutional Settings: services to provide living arrangements for persons unable to live independently; the level of supervision, services provided and length of stay at community residential alternatives will vary by the type of program and the needs and functioning level of the residents; other services may be provided in a community residential alternative which promote the acquisition of independent living skills and integration with the community. (Source: P.A. 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/3)(from Ch. 91 1/2, par. 903) Sec. 3. Responsibilities for Community Services. Pursuant to this Act, the Department of Human Services shall facilitate the establishment of a comprehensive and coordinated array of community services based upon a federal, State and local partnership. In order to assist in implementation of this Act, the Department shall prescribe and publish rules and regulations. The Department may request the assistance of other State agencies, local government entities, direct services providers, trade associations, and others in the development of these regulations or other policies related to community services. The Department shall assume the following roles and responsibilities for community services: (a) Service Priorities. Within the service categories described in Section 2 of this Act, establish and publish priorities for community services to be rendered, and priority populations to receive these services. (b) Planning. By January 1, 1994 and by January 1 of each third year thereafter, prepare and publish a Plan which describes goals and objectives for community services state‑wide and for regions and subregions needs assessment, steps and time‑tables for implementation of the goals also shall be included; programmatic goals and objectives for community services shall cover the service categories defined in Section 2 of this Act; the Department shall insure local participation in the planning process. (c) Public Information and Education. Develop programs aimed at improving the relationship between communities and their residents with disabilities; prepare and disseminate public information and educational materials on the prevention of developmental disabilities, mental illness, and alcohol or drug dependence, and on available treatment and habilitation services for persons with these disabilities. (d) Quality Assurance. Promulgate minimum program standards, rules and regulations to insure that Department funded services maintain acceptable quality and assure enforcement of these standards through regular monitoring of services and through program evaluation; this applies except where this responsibility is explicitly given by law to another State agency. (d‑5) Accreditation requirements for providers of mental health and substance abuse treatment services. Except when the federal or State statutes authorizing a program, or the federal regulations implementing a program, are to the contrary, accreditation shall be accepted by the Department in lieu of the Department's facility or program certification or licensure onsite review requirements and shall be accepted as a substitute for the Department's administrative and program monitoring requirements, except as required by subsection (d‑10), in the case of: (1) Any organization from which the Department
purchases mental health or substance abuse services and that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (Joint Commission on Accreditation of Healthcare Organizations (JCAHO)); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (Council on Accreditation for Children and Family Services (COA)); or the Standards Manual for Organizations Serving People with Disabilities (the Rehabilitation Accreditation Commission (CARF)).
(2) Any mental health facility or program licensed
or certified by the Department, or any substance abuse service licensed by the Department, that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (JCAHO); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (COA); or the Standards Manual for Organizations Serving People with Disabilities (CARF).
(3) Any network of providers from which the
Department purchases mental health or substance abuse services and that is accredited under any of the following: the Comprehensive Accreditation Manual for Behavioral Health Care (JCAHO); the Comprehensive Accreditation Manual for Hospitals (JCAHO); the Standards Manual for the Council on Accreditation for Children and Family Services (COA); the Standards Manual for Organizations Serving People with Disabilities (CARF); or the National Committee for Quality Assurance. A provider organization that is part of an accredited network shall be afforded the same rights under this subsection.
(d‑10) For mental health and substance abuse services, the Department may develop standards or promulgate rules that establish additional standards for monitoring and licensing accredited programs, services, and facilities that the Department has determined are not covered by the accreditation standards and processes. These additional standards for monitoring and licensing accredited programs, services, and facilities and the associated monitoring must not duplicate the standards and processes already covered by the accrediting bodies. (d‑15) The Department shall be given proof of compliance with fire and health safety standards, which must be submitted as required by rule. (d‑20) The Department, by accepting the survey or inspection of an accrediting organization, does not forfeit its rights to perform inspections at any time, including contract monitoring to ensure that services are provided in accordance with the contract. The Department reserves the right to monitor a provider of mental health and substance abuse treatment services when the survey or inspection of an accrediting organization has established any deficiency in the accreditation standards and processes. (d‑25) On and after the effective date of this amendatory Act of the 92nd General Assembly, the accreditation requirements of this Section apply to contracted organizations that are already accredited. (e) Program Evaluation. Develop a system for conducting evaluation of the effectiveness of community services, according to preestablished performance standards; evaluate the extent to which performance according to established standards aids in achieving the goals of this Act; evaluation data also shall be used for quality assurance purposes as well as for planning activities. (f) Research. Conduct research in order to increase understanding of mental illness, developmental disabilities and alcohol and drug dependence. (g) Technical Assistance. Provide technical assistance to provider agencies receiving funds or serving clients in order to assist these agencies in providing appropriate, quality services; also provide assistance and guidance to other State agencies and local governmental bodies serving the disabled in order to strengthen their efforts to provide appropriate community services; and assist provider agencies in accessing other available funding, including federal, State, local, third‑party and private resources. (h) Placement Process. Promote the appropriate placement of clients in community services through the development and implementation of client assessment and diagnostic instruments to assist in identifying the individual's service needs; client assessment instruments also can be utilized for purposes of program evaluation; whenever possible, assure that placements in State‑operated facilities are referrals from community agencies. (i) Interagency Coordination. Assume leadership in promoting cooperation among State health and human service agencies to insure that a comprehensive, coordinated community services system is in place; to insure persons with a disability access to needed services; and to insure continuity of care and allow clients to move among service settings as their needs change; also work with other agencies to establish effective prevention programs. (j) Financial Assistance. Provide financial assistance to local provider agencies through purchase‑of‑care contracts and grants, pursuant to Section 4 of this Act. (Source: P.A. 95‑682, eff. 10‑11‑07.)
(405 ILCS 30/4)(from Ch. 91 1/2, par. 904) Sec. 4. Financing for Community Services. (a) The Department of Human Services is authorized to provide financial reimbursement to eligible private service providers, corporations, local government entities or voluntary associations for the provision of services to persons with mental illness, persons with a developmental disability and alcohol and drug dependent persons living in the community for the purpose of achieving the goals of this Act. The Department shall utilize the following funding mechanisms for community services: (1) Purchase of Care Contracts: services purchased
on a predetermined fee per unit of service basis from private providers or governmental entities. Fee per service rates are set by an established formula which covers some portion of personnel, supplies, and other allowable costs, and which makes some allowance for geographic variations in costs as well as for additional program components.
(2) Grants: sums of money which the Department
grants to private providers or governmental entities pursuant to the grant recipient's agreement to provide certain services, as defined by departmental grant guidelines, to an approximate number of service recipients. Grant levels are set through consideration of personnel, supply and other allowable costs, as well as other funds available to the program.
(3) Other Funding Arrangements: funding mechanisms
may be established on a pilot basis in order to examine the feasibility of alternative financing arrangements for the provision of community services.
The Department shall establish and maintain an equitable system of payment which allows providers to improve persons with disabilities' capabilities for independence and reduces their reliance on State‑operated services. (b) The Governor shall create a commission by September 1, 2009, or as soon thereafter as possible, to review funding methodologies, identify gaps in funding, identify revenue, and prioritize use of that revenue for community developmental disability services, mental health services, alcohol and substance abuse services, rehabilitation services, and early intervention services. The Office of the Governor shall provide staff support for the commission. (c) The first meeting of the commission shall be held within the first month after the creation and appointment of the commission, and a final report summarizing the commission's recommendations must be issued within 12 months after the first meeting, and no later than September 1, 2010, to the Governor and the General Assembly. (d) The commission shall have the following 13 voting members: (A) one member of the House of Representatives,
appointed by the Speaker of the House of Representatives;
(B) one member of the House of Representatives,
appointed by the House Minority Leader;
(C) one member of the Senate, appointed by the
President of the Senate;
(D) one member of the Senate, appointed by the
Senate Minority Leader;
(E) one person with a developmental disability, or
a family member or guardian of such a person, appointed by the Governor;
(F) one person with a mental illness, or a family
member or guardian of such a person, appointed by the Governor;
(G) two persons from unions that represent employees
of community providers that serve people with developmental disabilities, mental illness, and alcohol and substance abuse disorders, appointed by the Governor; and
(H) five persons from statewide associations that
represent community providers that provide residential, day training, and other developmental disability services, mental health services, alcohol and substance abuse services, rehabilitation services, or early intervention services, or any combination of those, appointed by the Governor.
The commission shall also have the following ex‑officio,
nonvoting members:
(I) the Director of the Governor's Office of
Management and Budget or his or her designee;
(J) the Chief Financial Officer of the Department of
Human Services or his or her designee;
(K) the Administrator of the Department of
Healthcare and Family Services Division of Finance or his or her designee;
(L) the Director of the Department of Human Services
Division of Developmental Disabilities or his or her designee;
(M) the Director of the Department of Human Services
Division of Mental Health or his or her designee; and
(N) the Director of the Department of Human Services
Division of Alcohol and Substance Abuse or his or her designee.
(e) The funding methodologies must reflect economic factors inherent in providing services and supports, recognize individual disability needs, and consider geographic differences, transportation costs, required staffing ratios, and mandates not currently funded. (f) In accepting Department funds, providers shall recognize their responsibility to be accountable to the Department and the State for the delivery of services which are consistent with the philosophies and goals of this Act and the rules and regulations promulgated under it. (Source: P.A. 95‑682, eff. 10‑11‑07; 96‑652, eff. 8‑24‑09.)
(405 ILCS 30/4.1)(from Ch. 91 1/2, par. 904.1) Sec. 4.1. Respite Services. (a) The Department of Human Services shall coordinate and financially assist the provision of community respite services for persons with a developmental disability. A respite service is the supplying of a substitute caregiver on a short‑term basis to provide temporary relief to the usual caregiver maintaining a person with a developmental disability in his home. Respite services shall be classified as substitute care provided on any of the following bases: (1) hourly or daily, which may include overnight, in
the home of a person with a developmental disability;
(2) daily, which shall include overnight, in a
community residential setting which is licensed, certified, approved or otherwise sanctioned by the Department or another State agency; or
(3) hourly, which shall not include overnight, in a
community provider location.
(b) A person is eligible for respite services if he or she is a person with a developmental disability and lives in a natural or foster family home with natural or foster family members whose care and supervision are essential to his or her well‑being. (c) In allocating funds to community providers for respite services, the Department shall give preference to programs which serve special population groups and targeted geographic areas, as determined by the Department. In determining special population groups, the Department shall consider the adequacy of current service programs in meeting the unique needs of minority groups and persons with certain types of disabilities. In determining targeted geographic areas, the Department shall consider an area's current funding and service levels and demographic indicators of need, such as the total population, the population in poverty and the infant mortality rate. The Department's provision of funds to community providers shall be subject to available appropriations. (d) Community providers may fund respite services through monies provided by the Department, local units of government, fees and other revenue sources. Any fees charged by a community provider shall be in accordance with a sliding fee scale established by the community provider pursuant to guidelines developed by the Department. The Department's guidelines shall include, but are not limited to, the following criteria: (1) fees may be charged only to responsible
relatives, as defined in Section 1‑124 of the Mental Health and Developmental Disabilities Code;
(2) no parent or guardian may be charged a fee for
respite services provided to his or her child less than 18 years of age or 18 through 21 years of age who is receiving services under the Education for All Handicapped Children Act of 1975 (Public Law 94‑142);
(3) no fee may exceed the provider's cost for the
service;
(4) no fee shall be charged which constitutes a
hardship for the respite service recipient's family or which impedes receiving needed respite services;
(5) fee scales shall incorporate consideration of
the income and size of the respite service recipient's family and any unusual expenses of the family, including those relating to the medical or disabling condition of the recipient.
(e) If a community provider has insufficient funds to provide respite services to all eligible persons, it shall give preference to those eligible persons in greatest need as defined by the Department. In defining need, the Department may consider the capacity of the person's family to provide care and the person's need for special services or programs based on such factors as functional level, medical and physical impairments and maladaptive behavior. (Source: P.A. 88‑380; 89‑507, eff. 7‑1‑97.)
(405 ILCS 30/4.3) Sec. 4.3. Family Support Services Voucher Pilot Program. (a) In this Section: "Family member" means a family member as defined by rules adopted by the Department of Human Services. "Family support services" means the services and activities described in subsection (d). (b) The Department of Human Services shall establish a Family Support Services Voucher Pilot Program which shall be a conversion of the program defined in Section 4.1. The Department may establish no more than 5 pilot programs. (c) The purpose of the pilot program is to do the following: (1) Increase the number of families who are able to
access family support services.
(2) Provide families with greater control over
family support services.
(3) Ensure that the diverse family support services
needs of families can be accommodated.
(4) Encourage a family's contribution toward payment
for the family support services they receive.
(5) Serve as a pilot program to evaluate the merits
of a family support services voucher program in comparison to the traditional respite program.
(d) The Department shall contract with community agencies to issue vouchers to participating families, or to employ a voucher‑like method that similarly makes services available based on the choice of families. A family may use the vouchers to purchase the following services and activities or to otherwise provide for those services and activities: (1) Services of an in‑home caregiver to supervise
the family member with a developmental disability in the home or in the community or both when other family members are not present.
(2) Services of a person to accompany the family
member with a developmental disability on outings, community activities, and similar activities.
(3) Registration of the family member with a
developmental disability in park district programs, extracurricular school activities, community college classes, and other similar types of community‑based programs.
(4) Services of home health care personnel if
medical training or expertise is required to meet the needs of the family member with a developmental disability.
(e) Families may employ the following types of individuals to provide family support services: (1) Related family members who do not reside in the
same home as the family member with a developmental disability.
(2) Friends or neighbors whom the family designates
as capable of meeting the needs of the family member with a developmental disability.
(3) Individuals recruited from the community (for
example, church members or college students).
(4) Individuals who work with the family member with
a developmental disability in a different capacity (for example, classroom aide or day program staff).
(5) Persons whose services are contracted for
through a home health agency licensed under the Home Health, Home Services, and Home Nursing Agency Licensing Act.
(f) Family support services moneys under the pilot program may not be used to purchase or provide for any of the following services or activities: (1) Out‑of‑home medical services. (2) Medical, therapeutic, or developmental
evaluations.
(3) Any product or item (for example, sports
equipment, therapeutic devices, or clothing).
(4) Family support services provided by a family
member whose primary residence is the same as that of the family member with a developmental disability.
(5) Services of a person to accompany the family on
an overnight trip.
(6) Any service or activity that should be provided
by the school in which the family member with a developmental disability is enrolled or that occurs as part of that school's typical school routine.
(7) Child care services while the primary caretaker
