Article 1.--SECRETARY OF HEALTH AND ENVIRONMENT, ACTIVITIES
65-1,172.Same; uses of confidential data.(a) Confidential data collected pursuant to this act shall be securelylocked and used only for thefollowing purposes:
(1) Ensuring the quality and completeness of the registrydata.
(2) Investigating the nature and cause of abnormalclusterings of cancer andthe possible cancer risk related to having an abortion.
(3) Offering through the personal physician, to personswith cancer, accessto cancer diagnostics and treatments not available except through clinicaltrials. As long as such trials are conducted with the informed, written consentof the cancer patient, the confidential data is approved for release by thesecretary for the purpose of such clinical trials and the clinical trials areapproved by the clinical entity.
(4) Releasing data back to the institution or individualwhich reportedcases as long as such release includes only those cases previously reported bythe requesting institution or individual.
(5) As part of an exchange agreement with another state,confidential datacollected on a resident of another state may be released to the cancer registryof that person's state of residence if that state has confidentialityrequirements that provide assurance of protection of confidentiality equivalentto that provided by Kansas under this act.
(6) Releasing information upon consent, in writing, of theperson who is thesubject of the information, or if such person is under 18 years of age, by suchperson's parent or guardian.
(7) Follow up for public health purposes. With the approval of the healthandenvironmental institutional review board as provided for in title 45, part 46of the code of federal regulations, the secretary of health and environment orthe secretary's designee, may contact individuals who are the subjects of thereports made pursuant to K.S.A. 65-1,169, and amendments thereto. The secretaryshall inform such individuals that the participation in such projects isvoluntary and may only be conducted with the written consent of the person whois the subject of the information or with the informed consent of a parent orlegal guardian if the person is under 18 years of age. Informed consent is notrequired if the person who is the subject of the information is deceased.
(b) The secretary shall adopt rules and regulations to define who may beauthorized to conduct such follow up studies and to develop criteria forobtaining informed consent.
History: L. 1997, ch. 110, § 5;L. 2007, ch. 177, § 24; May 17.
Article 1.--SECRETARY OF HEALTH AND ENVIRONMENT, ACTIVITIES
65-1,172.Same; uses of confidential data.(a) Confidential data collected pursuant to this act shall be securelylocked and used only for thefollowing purposes:
(1) Ensuring the quality and completeness of the registrydata.
(2) Investigating the nature and cause of abnormalclusterings of cancer andthe possible cancer risk related to having an abortion.
(3) Offering through the personal physician, to personswith cancer, accessto cancer diagnostics and treatments not available except through clinicaltrials. As long as such trials are conducted with the informed, written consentof the cancer patient, the confidential data is approved for release by thesecretary for the purpose of such clinical trials and the clinical trials areapproved by the clinical entity.
(4) Releasing data back to the institution or individualwhich reportedcases as long as such release includes only those cases previously reported bythe requesting institution or individual.
(5) As part of an exchange agreement with another state,confidential datacollected on a resident of another state may be released to the cancer registryof that person's state of residence if that state has confidentialityrequirements that provide assurance of protection of confidentiality equivalentto that provided by Kansas under this act.
(6) Releasing information upon consent, in writing, of theperson who is thesubject of the information, or if such person is under 18 years of age, by suchperson's parent or guardian.
(7) Follow up for public health purposes. With the approval of the healthandenvironmental institutional review board as provided for in title 45, part 46of the code of federal regulations, the secretary of health and environment orthe secretary's designee, may contact individuals who are the subjects of thereports made pursuant to K.S.A. 65-1,169, and amendments thereto. The secretaryshall inform such individuals that the participation in such projects isvoluntary and may only be conducted with the written consent of the person whois the subject of the information or with the informed consent of a parent orlegal guardian if the person is under 18 years of age. Informed consent is notrequired if the person who is the subject of the information is deceased.
(b) The secretary shall adopt rules and regulations to define who may beauthorized to conduct such follow up studies and to develop criteria forobtaining informed consent.
History: L. 1997, ch. 110, § 5;L. 2007, ch. 177, § 24; May 17.
Article 1.--SECRETARY OF HEALTH AND ENVIRONMENT, ACTIVITIES
65-1,172.Same; uses of confidential data.(a) Confidential data collected pursuant to this act shall be securelylocked and used only for thefollowing purposes:
(1) Ensuring the quality and completeness of the registrydata.
(2) Investigating the nature and cause of abnormalclusterings of cancer andthe possible cancer risk related to having an abortion.
(3) Offering through the personal physician, to personswith cancer, accessto cancer diagnostics and treatments not available except through clinicaltrials. As long as such trials are conducted with the informed, written consentof the cancer patient, the confidential data is approved for release by thesecretary for the purpose of such clinical trials and the clinical trials areapproved by the clinical entity.
(4) Releasing data back to the institution or individualwhich reportedcases as long as such release includes only those cases previously reported bythe requesting institution or individual.
(5) As part of an exchange agreement with another state,confidential datacollected on a resident of another state may be released to the cancer registryof that person's state of residence if that state has confidentialityrequirements that provide assurance of protection of confidentiality equivalentto that provided by Kansas under this act.
(6) Releasing information upon consent, in writing, of theperson who is thesubject of the information, or if such person is under 18 years of age, by suchperson's parent or guardian.
(7) Follow up for public health purposes. With the approval of the healthandenvironmental institutional review board as provided for in title 45, part 46of the code of federal regulations, the secretary of health and environment orthe secretary's designee, may contact individuals who are the subjects of thereports made pursuant to K.S.A. 65-1,169, and amendments thereto. The secretaryshall inform such individuals that the participation in such projects isvoluntary and may only be conducted with the written consent of the person whois the subject of the information or with the informed consent of a parent orlegal guardian if the person is under 18 years of age. Informed consent is notrequired if the person who is the subject of the information is deceased.
(b) The secretary shall adopt rules and regulations to define who may beauthorized to conduct such follow up studies and to develop criteria forobtaining informed consent.
History: L. 1997, ch. 110, § 5;L. 2007, ch. 177, § 24; May 17.
